Michelle's Book Foreword

I see a skinny smiling girl with long blonde hair swimming around in my neighbor's shiny grass. She is laughing and flirting and I think she is probably the same as me--three or four years old. I wonder if she has words because she won't say anything back to me no matter what I say--she just keeps rolling around in the dewy yard laughing and smiling like she has the best secret in the world.

That is my first memory of my best friend, Michelle, imprinted in my mind like a really peaceful dream--hazy and happy. I can't help but think of the irony of me writing a foreword for her book. At the young age at which I met her, we didn't have the language, the words, to communicate fully. And here we are as adults, conveying finally in this book, those precious secrets of a giggling girl rolling in the grass.

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Snow days mean sledding! Michelle's father warns us to not go near the ice-covered creek at the side of the hill. Michelle holds the reins at the front of the sled. I man the rear with my arms around her waist. After her dad gives us a push down the hill, I hear Michelle giggling; I realize we are veering toward the creek. Shrieking as we get closer--half horrified, half excited--I brace myself for the flight over the creek bed where we land head-first in ice-covered water.

 At Michelle's home, we are stripped out of dripping wet snowsuits and wrapped in cozy blankets by the fire. Playing with our dolls, we drink cocoa with marshmallows until it is night, and time for me to go home.
 
A few years ago, Michelle and I visited her father who, at the end stage of Huntington's disease, resides in a nursing home. We laughed and recounted that memory to him and in spite of the catatonic state he appeared to be in...his eyes lit up...crinkling into what I know was a smile in his eyes. Broken rules can make magnificent memories.

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Huntington's is a genetic disorder which carries a 50/50 risk for inheriting it if you have a parent with the disease. Michelle knew for a long time she was at risk for Huntington's because of her paternal grandmother's diagnosis. And then her father's.

She was always a bit of a wild child. I was slightly more shy. The perfect yin to my yang. Childhood was one adventure after another. On one family vacation as teenagers, we swore to her parents that we would stay together on the beach until curfew at dark. Of course we lost each other almost immediately, choosing to kiss boys on the boardwalks. Upon realizing we were late and lost from each other--we raced home separately. I walked in the front door first...swearing to her parents that Michelle was just behind me knocking off sand. She ruined the story mid-way through by running in the back door breathlessly. We lived large together.

Michelle graduated college in three years. At 21, she biked through Africa and almost crashed into a cobra. She met a man at 22 and, one month later, moved to Nashville with him. She jumped out of an airplane. Learned to scuba dive. Switched careers. Got married. Traveled.

And was told she had Huntington's.

Looking back, I believe that from the beginning the author was gifted with wisdom and fearlessness. Perhaps the universe blesses those who will carry heavy burdens down the road with illumination on living. On getting the most from life.

She wrote most of this book after she was diagnosed but before there were visible symptoms. The amazing thing about this book is that the story after her diagnosis continues to be so unfair.

Once she had written the book and became symptomatic, her husband left her. She also had to resign from her high-level advertising position because she could no longer do it. She gave up driving and dating.

But she also travelled to Nepal, climbed Mt. Everest, visited Vietnam and hiked the Mont Blanc trail in Switzerland. She volunteered in Haiti, after the earthquake, for 2 summers in a row at an orphanage and decided to sponsor her favorite, special needs child named Rachel, by sending money each month.

Despite the continued hardships after her diagnosis, she still never felt sorry for herself or changed how she lived which gives so much credibility to the tenets of this book.

Today I drink coffee with a beautiful woman with shiny blonde and silver hair. She has entered the middle stage of Huntington's which means difficulty walking, talking, uncontrolled movements and cognitive impairment. She is throwing her head back laughing although she has lost the words to fully express her joy or her sorrow. She has asked me write the foreword for the book she wrote years ago when she had language to capture her wisdom; her learning from living with the presage of a terminal illness that slowly strips away your life until only your essence remains.

This book teaches how to embrace your essence and thus, happiness. Michelle's is beautiful and fearless. And fearlessness is a magnificent teacher. It doesn't always mean breaking rules. It can be breaking out of our molds or habits. Building the courage to show exactly who we are to the world. Or tougher yet, showing who we are....to ourselves.

So many people get to the end of their lives with regrets on how they should have lived. The blessing of being diagnosed with a long-term terminal illness is that it provides a motivation to live more abundantly. And it teaches the people watching close up, like me, to change how we live.

Meet Michelle. Be happier.