Michelle has asked me to write the forward for her book. I know nothing about writing "forwards"...I haven't even googled it.
Writing these few sentences makes my skin start to ache. Putting words on a page makes it real and permanent. But I'm going to pull it together because Chelle is the one living with Huntington's Disease. She is the one who struggles now to walk and to talk. So I need to be her voice despite it being the most acutely painful experience in my life....watching my best friend/sister live with a terminal illness.
Where are you God? Yeah you. I'm furious.
How can this disease exist that peels everything away from a person slowly? Over the course of 20 years everything just dissolves from your grasp. People, job, house, car, independence, body, mind, reading, voice--the disease violates a life and leaves everyone behind naked and aching.
So I will write this forward as a fuck you to Huntington's. Because I won't let it take Michelle's spirit or mine.
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